I had many scary thoughts when I contemplated starting a blog about sweet Erik. Mostly, "no, I can't write," ... "ug, I don't want to be that transparent," ... "what on earth would I say?"
Nevertheless, I really wanted to find others out there who were sharing the same experience. "Where are blogs with aging Downs adults?" I wondered. "Are the parents/siblings of these individuals not computer people or are they working so hard to care for their loved one they're just exhausted?" Over the 25 months I've been blogging there have been a handful of people in the same circumstance who have reached back to me for which I'm thankful.
Now, looking back, I'm so happy I wrote. This blog gave Erik a voice. It helped us include others in his life, especially family members and friends who loved Erik but didn't live nearby. It has given me a priceless journal of the last 2 years of his life. I enjoyed sharing all the funny things he did. Friends who hadn't met him got to know him through reading. From this blog, people from many countries around the world read about him. This boggles my mind.
As I wind down this last chapter of "Hi, this is Erik," I thought I'd list my favorite blogposts and why. But as I spent time reviewing all the posts it became real hard for me to choose favorites. I loved revisiting the posts where Erik was having a good day and was determined to shower me with sweetness. The memories they bring back are the sweetest in the world. And the ones where he'd wordlessly communicate something--precious. And I loved telling you about his interesting life, expecially how much he loved food, laughing, teasing and singing. His simple sweetness was real and writing about it became a privelege for me.
I thank you for reading. For commenting. For praying. And going through this journey with us. Your comments encouraged me in ways I could never express. You helped me not feel so isolated. I wish I could give each of you a hug.
Reader, if you have a family member with some kind of disability, I'm sure there are many who would love to know what your days are like. I know I would. We need each other.
So, that's all for now. Thanks and much love from me.